Sunday, 13 June 2010

I Tried

To everyone out there who doesn't understand what it's like to live with EDS:

I am not lazy. I am not sitting here on the sofa when there's housework to be done simply because I'm ignoring it and hoping it will go away by itself, or that someone else will do it for me. If I promised I would try and do something, I meant I would try. If I tried but couldn't manage it, I'm probably more upset about it than you are; shouting will not help. If I say I can't do something, I mean I can't do it. It's not that I don't want to, and it's most definitely not that I'm using my EDS as an 'excuse', it's that I can't. Just because I managed to grit my teeth, fight through the pain and do it last time, doesn't mean that I can do it every time. Just because I can do something, doesn't mean that it won't drain all my energy and willpower and leave me unable to do anything else for the rest of the day. Just because I do something once does not mean I can do it again. Just because I could do something yesterday does not mean I can do it today. Just because I can do something today does not mean that I will be able to do it tomorrow. Just because I can't do something today does not mean I won't be able to tomorrow. Just because I work my fucking ass off for hours to do one little thing that would take a normal person a tenth of the time, does not mean that I would be able to get a job doing it full-time. Just because you can't see my pain does not mean it's not there. Just because you can't see that what you're saying is incredibly insulting and hurtful, does not mean that I shouldn't get upset.

I am not lazy. I am trying my hardest.

And to everyone who does have EDS but likes to bitch and snipe about who has it worse rather than actually listening to each other's problems and offering support and understanding:

Fuck you. You guys should fucking know better.

3 comments:

BenefitScroungingScum said...

I've always believed, or perhaps just hoped, that the "I'm worse than you are" crowd are vastly over represented online. Oh, but maybe at support group meet ups too.

That aside, I like your blog, great writing, looking forward to hearing more.
BG Xx

Friendly Neighbourhood Grammar Nazi said...

Actually I've found that people online are generally lovely. Only really met EDSers via facebook groups though, but they're all wonderful there!

It's the sister I live with that does it, and that inspired this post.

(thank you for the compliments <3)

Macca said...

*hugs* :(