Wheelchair Access, Or Lack Of It

Bought a nice zebra-print* blanket to throw over my chair as I hate the black fabric on it. I shall dye the white bits purple and have purple zebra stripes on my chair. I'm a tad confused as to the actual dyeing of it though as my little pouch of dye says it will do 250g of fabric. The blanket is 160cmx200cm but has no weight on it whatsoever. Kind of hoping I can dye the blanket and some tubigrips** with that little pouch but I doubt it will happen.

So yeah, even more awesome things in the mail now. Seriously want some deliveries.

Also, been having a look at flights to Spain as I can finally afford a passport after not having one for three years and missing out on so many offers of free flights to Spain to visit family. Ridiculously difficult to get to the places in Spain I want to go to from the airports that are near me. Plus I'm not sure if I can bring the chair as Ryanair are apparently quite twattish about wheelchairs and it would be expensive to book it in as extra luggage. Gonna call them tomorrow and have a rant but their lines aren't open on Sunday so not much I can do about it tonight.

Was considering going to see Barenaked Ladies at Rock City in September, and visiting Derby friends whilst down there, but turns out Rock City has no wheelchair access and the last time I went there without the chair...well...it sucked balls. I was completely and utterly dead by the end of the night, would not have been able to get home if ND hadn't brought me extra-strength painkiller spliffs*** and even that wore out before I managed to get to sleep, so I stayed up all night in tears of agony. Reeeeaaally don't want to repeat that if I can find any other way around it.

Turns out that whilst wheelchair is going to be incredibly useful and pain-relieving for me, it's also going to get in the way. A lot. Stupid people not catering to the disabled.

Also, three days behind on FFM now. Catching up slowly. Will be there by the end of the month I think. Although, I did write three poems as well as all that flash fic this month (totally accidentally - was trying to write prose but my head wouldn't stop rhyming), so I might just count that as me being right on track...

Oh, also also, forgot to mention that I got a DLA letter through the other day. They re-assessed me as I was on a yearly claim and the year had run out, and decided once again that I require nothing but low-rate care. Most of the reasons they cited were wrong so obviously I failed at filling out the form****. *sigh* Will call them tomorrow as well and see what I can do about it but I don't think it'll change anything.






*If you didn't know, zebras are the mascots of EDS, due to our condition being so rare and under-diagnosed due to med students being taught 'if you hear hooves, think horses, not zebras'. Is great for most people, but seriously screws over us zebras. They were investigating symptoms of my EDS when I was a goddamn baby, but it took until I was 21 to figure out what was wrong.

**Plan to hide tubigrips = dye tubigrips purple, get black lace/fishnet/mesh/something armwarmers to go over the top. Am currently just using normal armwarmers to hide my tubigrips and it gets ridiculously hot sometimes compared to just the 'grips.

***We've worked out that five times what he normally puts in a spliff is enough to crack my drug-resistant barriers and actually give me pain relief.

****Seriously, you people crying about fraudulent claims: It's ridiculously difficult to get the benefits legitimately, let alone fraudulently. I call bullshit!